Utah trials

Settled predominantly by Mormons in the s, Utah stands out for the lowest income inequality of any U. Other key cities are Park City, St.

George, and Ogden. Utah's unique history gives it a flavor unlike anywhere else in the United States. Healthcare is a high priority. It has more than beds and is the largest hospital in Utah, near Salt Lake City. The NICHD Neonatal Research Network's Follow-Up study is a multi-center cohort in which surviving extremely low birth-weight infants born in participating network centers receive neurodevelopmental, neurosensory and functional assessments at months corrected age Infants born prior to July 1, were seen at months corrected age.

Data regarding pregnancy and neonatal outcome are collected prospectively. The goal is to identify potential maternal and neonatal risk factors that may Biliary atresia, idiopathic neonatal hepatitis, and specific genetic cholestatic conditions are the most common causes of jaundice and hyperbilirubinemia that continue beyond the newborn period.

The long term goal of the Childhood Liver Disease Research Network ChiLDReN is to establish a database of clinical information and plasma, serum, and tissue samples from cholestatic children to facilitate research and to perform clinical, epidemiological and therapeutic trials in these important pediat The GDB collects observational baseline data on both mothers and infants, and the therapies used and outcomes of the infants.

The information collected is not specific to a disease or treatment i. Data are analyzed to find associations and trends between baseline information, treatments, and infant outcome, and to develop future NRN trials.

This clinical trial studies cancer survivors to identify those who are at increased risk of developing late-occurring complications after undergoing treatment for childhood cancer. A patient's genes may affect the risk of developing complications, such as congestive heart failure, avascular necrosis, stroke, and second cancer, years after undergoing cancer treatment.

Genetic studies may help doctors identify survivors of childhood cancer who are more likely to develop late complications. This is the clinical registry of cell based therapies that is available to researchers around the world. The registry is web based. All researches must provide IRB approval to the coordinating site- University of Utah in order to obtain access to the registry. The are predetermined case report forms for cardiovascular diseases that are currently in clinical trials- including demographics, safety, and possible efficacy end-points.

All investigators have access to their own data. The servers are U The data collected by the MPS I Registry will provide information to better characterize the natural history and progression of MPS I as well as the clinical responses of patients receiving enzyme replacement therapy, such as Aldurazyme Recombinant Human Alpha-L-Iduronidase , or other treatment modalities. The objectives of the Registry are: To evaluate the long Read more Thumbs Up Trials.

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